Wednesday, May 27, 2009

We continue to struggle with Trista's reflux. She is on both Prevacid and Zantac multiple times a day and she still experiences very severe reflux. After she eats, even up to 4-5 hours later, her milk still creeps back up. It is very painful for her and she struggles to breathe.
I talked to the GI nurse at Children's today. Since Trista is a "heart" baby, they have to take extra precautions when treating her. This is the process:

1. Try medicine (which we already have and they don't do a great job)

2. Do additional testing (look at her lower GI area to see if there is a problem)

3. Go back to the NG tube. It would essentially go in through her nose, bypass her stomach and empty out into the intestine. That way, her food would not be sitting in her stomach and wouldn't have a chance to move back up into her esophogus. This is more long-term.

4. Nissen Fundoplication Surgery. This is the absolute last resort and we want to avoid this if at all possible. From what the nurse told me, it is not something we want to put her through if it can be avoided.

The doctors had left for the day when I talked to the nurse, so she is going to consult with them to see what they would like to do next and call us back tomorrow. We would like to start with some additional testing and see what the results are before placing the tube back in.
We'll keep you posted as soon as we hear more.

A new blog design will be up and running late next week, so be sure to stop back by and take a look! :)

Heart Hugs,

1 comment:

  1. I found your blog from Bentley's blog. Baby Trista is so cute. I am so sorry to hear about her reflux problems. My second daughter had reflux very bad to where she was gaining very little weight. She had to have an upper GI done which was normal but was on Axid and Reglan. Hopefully her Dr's can get a med that will work for her. I understand the frustration that you are going through having a reflux baby and not being able to do a whole lot for them. I would ask about trying another med before doing the NG tube. Good luck and I hope things get better.