Here is a picture of Trista on the 4th. We had a small get together and, of course, crazy big and loud fireworks thanks to my pyrotechnic loving husband!
She had another Genetics appointment in July and, although she tested negative for Noonan Syndrome, the doctor still thinks there is a good possibility she has it. Apparently, only 60% of positive results actually show up positive. Weird, huh? He asked if we wanted to do another round of testing and we decided not to test anymore at this point. Maybe later. She just has way too much anxiety right now around doctors and hospitals. Another blood draw would send her over the edge. Since it is not going to change her course of treatment right now, we will wait until she's a little older for more testing. The poor little thing needs a break!
As you can probably tell in the pictures, her eyelids are becoming increasingly droopy. We have another appt. with the Opthamologist and Plastic Surgeon next month to determine when surgery will be needed.
She's still doing great with her hearing aids. She continues to be heavily involved in speech therapy, physical therapy and aural rehabilitation. She also sees her Audiologist every 2-3 weeks to have her hearing tested. She's still measuring moderate hearing loss in the right ear and moderately severe in her left ear. People always ask if she can hear "normal" with her hearing aids on. That answer is no. She will never be able to hear like we hear. They can only amplify sounds for her.
Me & the boys and Kevin, Jaime and Sam went to Monster Jam (aka Monster Trucks) a few weeks ago and had a BLAST! Talan loved every minute of it. Kevin & Jaime brought some flags for him to wave and he was very serious about waving those flags. It was so cute - we just kept watching him because he was so into it all. I love this age - I want him to stay 4 forever!!
I mean, really? Could he get any stinkin' cuter???
The O'Leary Family
Scott & Alec
Me & Jaime
We also went to a pretty crazy concert last week, but that's a whole post in itself!!!
That's all for now. Enjoy the rest of your July! :)
Glad everything is going well. I don't think Miss Priss can get any cuter, I mean really!! She is getting so big.
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